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Fourth National Conference on
Quality Health Care for Culturally Diverse Populations:
Integrating Community Needs into the National Health Agenda

September 28-October 1, 2004, Washington, DC
Hilton Washington, Washington DC

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Workshops   |  A  |  B  |  C  |  D  |  E  |

Workshop A-4: Addressing racism and discrimination in health care

While researchers and health activists acknowledge that race plays a role in both the creation of and elimination of disparities, the role of race, racism and racial discrimination in health is not central to the debate about how to measure disparities or how to address them. In this workshop, three speakers will explore the role of community, researchers and policymakers in addressing racial disparities in health. The panel will focus on (1) the legal challenges to confronting racial discrimination in health and care, (2) the importance of measuring the relevant variables to capture the effects of racism and discrimination in health research, and (3) the role of communities in setting the legislative/policy agenda to address the seemingly intractable issues of race, racial discrimination and racism as they relate to health.

Discussant
Humberto Brown,
is the Director of Health Disparity Initiatives and New Constituency Development for the Arthur Ashe Institute for Urban Health (AAIUH). He is a loaned executive to the AAIUH from SUNY Downstate Medical Center. Mr. Brown directs the AAIUH’s seminar series on health disparities and is a member of the research team for AAIUH’s National Cancer Institute funded research study, Prostate Cancer Control with Community Barbers. He conducts focus groups with and trains African American and Caribbean barbers on a variety of issues to support them as prostate health advocates in their shops. Mr. Brown is part of the leadership team for the Community Partnership to Increase Diversity in the Health Care Professions, a 40 member coalition committed to offering a community grounded voice to this issue in New York City. He is also part of a collaborative team from SUNY Downstate, AAIUH and the Brooklyn Borough President’s Office that is developing Brooklyn’s Center for Health Care Disparities.


Humberto R. Brown
Director, New Constituency Development/Health Disparities Initiatives
SUNY Downstate Medical Center
Arthur Ashe Institute for Urban Health
483 Hudson Avenue
Brooklyn, New York
718-222-5953 phone
718-222-4462 fax
hbrown@downstate.edu
http://downstate.edu
http://www.arthurasheinstitute.org


Measuring Race/Ethnicity, Racism, Discrimination and Socioeconomic Position in Health Research

There has also been a lot of discussion about the inadequacy of measures of socioeconomic status and the need to take other variables into account, such as the impact of racism and discrimination on health, as well as behavioral risk factors. . The failure to explain racial and ethnic differentials in health outcomes has prompted research efforts to capture racism and discrimination as explanatory variables. The focus of this presentation will be on measurement of race and racism in public health research. Dr. Carter-Pokras argues that the collection of data on race is necessary in public health research in order to monitor trends over time at national, state and local (growing socioeconomic inequality & worsening health with acculturation among Hispanics); to evaluate programs; to understand etiologic process and identify points of intervention; and, to monitor and enforce the Civil Rights Act. According to Dr. Carter-Pokras “…measurable gains in advancing a civil rights agenda to bring all Americans into the economic, political & social mainstream would have been extremely difficult, if not impossible if we did not have adequate information on racial and ethnic groups.” She will discuss innovative measurements and promising research directions.

 

In addition to learning about innovations in measuring racism and discrimination in health research, participants will have gain a better understanding of how to best use such research to improve the health of the community," Dr. Carter-Pokras says. "Research should be conducted in a way that allows community leaders to work with decision-makers to develop and target the programs that were researched”

Dr. Olivia Carter-Pokras is an Associate Professor in the Department of Epidemiology and Preventive Medicine at the University of Maryland School Of Medicine. Prior to joining the faculty at the University of Maryland, Dr. Carter-Pokras was the Director of the Division of Policy and Data at the Office of Minority Health in the Department of Health and Human Services. Dr. Carter-Pokras teaches Health Survey Research Methods and is currently conducting health assessments of Latinos in Baltimore and Montgomery County in close partnership with local government and community based organizations. Her numerous publications and presentations center around health disparities, racial and ethnic data, Latino health, children’ environmental health. A second-generation Bolivian, Dr. Carter-Pokras applies her research training and expertise, and knowledge of health policy, to work with community and government officials to improve access to care and eliminate health disparities.

Olivia Carter-Pokras, Ph.D
Associate Professor
Division of Gender-Based Epidemiology
University of Maryland
Room 219, Howard Hall
660 West Redwood Street
Baltimore, Maryland 21201
Phone: (410) 706-0463
Fax: (410) 706-4433
opokras@epi.umaryland.edu


A Community Legislative Agenda to Address Racial Disparities in Health

This presentation will focus on the development and implementation of a legislative agenda to address racial and ethnic disparities in health . Specifically offered will be a discussion on “how to network with and educate state and federal health officials on the value of cultural competence in addressing racial and ethnic health disparities” as well as “how to build community coalitions with providers, interpreters, and ethnic communities to address access, quality, and workforce issues all of which influence racial disparities in health”.

Bronx Health REACH was developed in 1999 by the Institute for Urban Family Health, in collaboration with the Center for Health and Public Services Research of New York University, and three community-based organizations. Since its inception, the Coalition has grown to include over 30 member organizations, including community based organizations, faith-based organizations, and health care providers. Bronx Health REACH receives funding from the U.S. Centers for Disease Control and Prevention and the New York State Department of Health.

The Coalition’s goal is to eliminate racial and ethnic disparities in health outcomes in the Southwest Bronx, where 95% of the population is black or Latino, and the rates of diabetes and heart diseases, as well as the rates of poor outcomes such as blindness and amputations are exceptionally high. In pursuit of this goal, Bronx Health REACH has implemented a variety of initiatives, such as a faith-based outreach initiative, a community health advocacy program, a nutrition and fitness initiative, a public health education campaign, and a legal and regulatory campaign.

In addition to developing and implementing model community programs, Bronx Health REACH has developed a statewide policy agenda to mobilize community leadership to educate leaders in government. With such a broad-based approach, Bronx Health REACH serves as a model for communities to address health disparities that exist throughout the state and country. In response to the dire situation that underrepresented minorities face when dealing with the health care system, REACH has positioned itself to affect change system-wide. REACH’s statewide advocacy agenda includes the seven issues which we believe are imperative to the elimination of racial and ethnic disparities in health outcomes.
With its slogan “Make Health Equality a Reality”, REACH is calling for a seven step legislative agenda.

Bronx Health REACH has achieved the development of a successful, diverse, and growing coalition that addresses issues in health care, prevention, and the underlying causes of disparities in health outcomes; and increased community awareness and knowledge of diabetes prevention, care and self management through such interventions as the faith-based outreach initiative and the community health advocacy program.

Maxine Golub, Senior Vice President for Planning and Development, provides leadership to the Institute’s development activities, and serves as liaison to community-based and funding partners. Ms. Golub was instrumental in developing the Bronx Health REACH program, funded by the US Centers for Disease Control, to address racial disparities in health outcomes in diabetes in the Southwest Bronx. She also serves as the Project Director for the Metropolitan Region of the New

York State Area Health Education System, designed to increase diversity in the healthcare workforce.
Ms. Golub has worked in the community health for more than 20 years, developing health outreach, primary care, and training programs, striving to address the challenges faced by community residents and health care providers within the complex urban health care system. In 2003, Ms. Golub received the Rosemarie Forstner Award from the Community Health Center Association of New York State for her outstanding dedication to making health care more accessible to the medically underserved.

Maxine L. Golub, M.P.H.
Senior Vice President for Planning and Development
Institute for Urban Family Health
16 East 16th Street
New York, NY 10003
Phone: (212) 633-0800 ext. 291
Fax: (212) 989-2840
mgolub@institute2000.org

 

The Civil Rights Dimension of Racial and Ethnic Disparities in Health Status

It is hard to talk about race. Discussions about race in general and racial discrimination in particular are potentially unnerving, which perhaps explains why such conversations are so few and far between.
This presentation will focus on the role of race and racial discrimination in explaining disparities in health. Mr. Perez will discuss the elimination of disparities as both a public health and civil rights challenge. His presentation will explore the legal issues involved in addressing the role of race and racial discrimination in creating disparities and offer solutions for addressing these factors.

Any effort to eliminate disparities must look first at the root causes. Mr. Perez acknowledges that some of these causes–economics, geography, genetic predispositions, lifestyle, education–are frequently cited as reasons why "communities of color are behind the curve in terms of a number of health indicators." In this presentation he will discuss the issue of racial discrimination as a factor in understanding and addressing racial disparities in health. Participants will learn about the challenges of and opportunities for employing legal approaches to address racial disparities in health.

This presentation focuses on the role of discrimination in explaining racial and ethnic disparities in health status, inequities in access to health care for minorities, and the often separate and unequal treatment afforded minorities in the health care system. Professor Perez is a civil rights lawyer whose teaching, scholarship and public service focuses on the intersection of health care and civil rights. This provocative presentation will address the role that racial discrimination plays in explaining racial and ethnic disparities, and outline a series of solutions that can address this important dimension of the challenge.

Tom Perez was elected to the Montgomery County Council on November 5, 2002, Perez serves on the Council's Transportation and Environment Committee, where he is lead Councilmember on the Environment, and on the Health and Human Services Committee. He comes to the Council from a distinguished career in public service, both in the federal government and in the community. A first generation Dominican American, Perez began his career as an entry-level attorney in the United States Department of Justice's Civil Rights Division and rose through the ranks to become Deputy Assistant Attorney General for Civil Rights. During the last two years of the Clinton administration, Perez was Director of the Office of Civil Rights at the Department of Health and Human Services under Secretary Donna Shalala, leading a 225-person agency with a $28 million budget. After resigning his position with the change in administration, Perez became an Assistant Professor of Law and Director of the Clinical Law programs at the University of Maryland School of Law.

Tom Perez
Councilmember
Montgomery County Council
100 Maryland Ave, 6th Floor
Rockville, MD 20850
(240) 777-7966
Councilmember.Perez@montgomerycountymd.gov

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    Fourth National Conference is presented by
State University of New York Downstate Medical Center, Resources for Cross Cultural Health Care, Arthur Ashe Institute for Urban Health, US Department of Health and Human Services, Joint Commission on Accreditation of Healthcare Organizations
    As with the rest of Diversity Rx, this section is a work in progress and we welcome information on other efforts, programs, and reports that will expand upon the information offered here. Please let us know if you have other examples to include here.
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