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Fourth National Conference on
Quality Health Care for Culturally Diverse Populations:
Integrating Community Needs into the National Health Agenda

September 28-October 1, 2004, Washington, DC
Hilton Washington, Washington DC

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Workshops   |  A  |  B  |  C  |  D  |  E  |

Workshop A-6: Health literacy: innovations and policy

Given the recent attention to health literacy with the IOM Report, the AHRQ Study, and the Surgeon General’s involvement, the importance of health literacy as a public health issue is growing. In addition, significant links have been made by the IOM Report between health literacy and health disparities.

In this session, replicable techniques for addressing low health literacy will be addressed. This session will cover the subject of Health Literacy focusing on policy, research and tools. One speaker will present on the IOM Health Literacy Report, the second will present on the Partnership for Clear Health Communication and will highlight the Ask Me 3 tool, and the third presenter will speak on a grassroots innovative health literacy project. The presentation will focus on health literacy in racially and ethnically diverse populations.

Moderator:
Joel Rosenquist is a Senior Manager for Health Literacy and Health Policy at Pfizer Inc headquarters in New York City. At Pfizer, Joel works with the Public Health Group running a number of public-private partnership programs to advance the quality of healthcare. These include the Pfizer Clear Health Communication Initiative, the AMA Foundation Partnership on Health Literacy, and American Academy of Family Physicians ‘Ask Me 3’ Study.

Previously, Joel was at the Robert Wood Johnson Foundation in Princeton, NJ where he worked with the Priority Populations team on developing programs to improve access the health care services for underserved populations. These programs included “Hablamos Juntos: Improving Patient-Provider Communication for Latinos,” and “Pipeline, Profession, and Practice: Community-Based Dental Education.” Prior to that, he worked at the National Research Council in Washington, DC on a variety of health and social science related research projects. He has also worked as a consultant on international health projects in Peru and Tanzania. He has a Master’s degree in Public Affairs from the Woodrow Wilson School at Princeton University and a BA in History from Santa Clara University.

Joel Rosenquist, M.P.A.
Public Health, US Medical
Pfizer Global Pharmaceuticals
235 East 42nd Street (205/4/8)
New York, NY 10017
212 733 4753, Fax 212-338-1506
joel.rosenquist@pfizer.com
www.pfizerhealthliteracy.com

 

Health Literacy: A Prescription to End Confusion: Report and Discussion on the Recent IOM Report

As a member of the committee which produced this report, I will present key findings and discuss their implications.

The committee charge was to:

  • Define the scope of the problem of health literacy. This would include identifying the affected populations and estimating the costs for society. Develop a set of basic indicators of health literacy to allow assessment of the extent of the problem at the individual, community, and national levels.
  • Identify the obstacles to creating a health literate public. These are likely to include the complexity of the health care system, the many and often contradictory health messages, rapidly advancing technologies, [and] limits within public education.
  • Assess the approaches that have been attempted.
  • Identify the gaps in research and programs.
  • Identify goals for health literacy efforts and suggest approaches.The report defines health literacy as: The degree to which individuals have the capacity to obtain, process, and understand basic health information and services needed to make appropriate health decisions.

Report recommendations will be presented and discussed. These cover topics such as extent of the problem, need for data, roles of federal agencies, roles of research funders, education of health professionals, public education, cultural, social and economic factors and recommendations for changes in health care systems.

Susan C. Scrimshaw is Dean of the School of Public Health, and Professor of Community Health Sciences and Anthropology, at the University of Illinois at Chicago. Her research focuses on family planning and fertility decision making, improving pregnancy outcomes, violence prevention, and culturally appropriate delivery of health care. She is a member of the Institute of Medicine, a Fellow of the American Anthropological Association, and the American Association for the Advancement of Science, and an appointed member of the Chicago Board of Health and Illinois State Board of Health. Recent appointments include Chair of the Institute of Medicine Committee on Communication for Behavior Change in the 21st Century: Improving the Health of Diverse Populations; memberships on the Institute of Medicine Board on Global Health, the Institute of Medicine Committee on Health Literacy; the CDC Task Force on Community Preventive Services; the US-Mexico Foundation for Science; and Chair of the Association of Schools of Public Health. She is bilingual and multicultual, having been reared in Guatemala.

Susan C. Scrimshaw, PhD, MPH
Dean, School of Public Health
University of Illinois at Chicago
1603 W. Taylor St. MC: 923
Chicago, IL 60612-4394
Phone: 312-996-5939
Fax: 312-996-1374
Scrimsha@uic.edu
http://uic.edu/sph/

Partnership for Clear Health Communication and Ask Me 3

Dr. Sharon Ottey will provide background on the National Medical Association’s work on cultural competence, and she will address health literacy in the Partnership for Clear Health Communication, the tool Ask Me 3, and in her practice.

Dr. Sharon Allison-Ottey is a fellowship trained Geriatrician and residency trained in Internal Medicine. She is currently in practice with COSHAR Medical Inc. and serves as the Chief Executive Officer. Additionally, she is one of the founding board members of the COSHAR Foundation, a nonprofit organization focused on impacting the health of the nation, one community at a time.

Dr. Allison-Ottey’s current research focus includes the Role of Spirituality in Medical Outcomes, Health Literacy, Osteoporosis in African Americans and Direct to Consumer Marketing’s effect on physicians and patients. She continues to teach medical students, residents and fellows in Maryland. She is a consultant for several Fortune 500 companies, medical organizations and professionals. She serves on several national and state appointed commissions and continues to advocate for improved health care and the elimination of health disparities.

She is active in numerous medical, political and civic organizations and is currently serving on the Board of Trustees of the National Medical Association, which is the oldest and largest association of African American physicians. It is notable that she was the youngest elected Trustee in the 105-year history of the National Medical Association. Additionally, she is an active member of the American Medical Association, American Geriatric Association and the American College of Physicians.

Sharon Denise Allison-Ottey, MD
CEO COSHAR Medical Inc
COSHAR Foundation
8601 Martin Luther King Highway
Suites 1 & 2
Lanham, Maryland 20706
Phone: (301) 773-8795
Fax: (301) 773- 8020
docsforyou@cosharmedical.com

Health Literacy: Policy and Practice Panel - Improve Health Literacy and Self-Management Skills of Chinese American Patients with Diabetes

Brief Description - The Charles B. Wang Community Health Center (CBWCHC), in collaboration with local and national partners conducted a three-session diabetes management workshop for 50 Chinese residents with diabetes. The intervention is part of a 2-year project titled The New York’s Chinese-American Diabetes Health Literacy Initiative, funded by the Pfizer Health Literacy Foundation. The goal of the intervention is to improve diabetes education and care among Chinese American patients by improving their health literacy and self-management skills. Through active learning and fun activities, the participants learned the signs and symptoms of diabetes, seriousness, medication management, and practiced skills in adapting a healthy diet and increasing physical activity. The intervention incorporates health literacy principles and components of culture such as rituals, language, and ways of life in designing the curricula and diabetes health messages.

Successes - Workshop participants learned specific self-management skills that have allowed them to adopt healthy and active lifestyles such as maintaining a balanced diet, testing blood glucose levels regularly, and coping with stress associated with diabetes. Pre and Post tests demonstrated participants’ knowledge gains about diabetes and improvements in self-management. Charts review indicated improvements in HgbA1C and blood cholesterol levels among participants.

Challenges and Limitations – Several challenges and limitations were encountered and overcome. It has been a challenge to explain the concept of health literacy to providers and community members. There is a lack of culturally and language appropriate health literacy tools to assess health literacy levels among the Chinese immigrant population. There is also a lack of culturally relevant and literacy appropriate self-help materials and intervention tools for Chinese individuals with diabetes. Another major challenge was that there is too much material to cover in health interventions: increase health literacy and basic health knowledge, address cultural beliefs and misconceptions, improve health communications between patients and providers, and practice self-management skills.

Lessons Learned - The intervention efforts need to involve participants as active partners and incorporate their concerns into the workshops. Field test health materials and intervention tools with target audience for cultural relevancy and literacy appropriateness is necessary. Educational materials such as diet intake, exercise demonstration diagram, and sample recipes need to be simple, concise, and easy to understand to meet the needs of low literate diabetic patients. The CBWCHC will continue to collaborate with partners to implement and evaluate culturally relevant, literacy appropriate intervention workshops for Chinese patients with diabetes.

Mr. Kwong received a Master's degree in Social Work from the University of Alabama at Tuscaloosa in 1989 and has pursued the Ph.D. Degree in Social Welfare from the City University of New York since 1997. He is currently the Health Education Special Projects Manager at the Charles B. Wang Community Health Center and directs several health promotion and research projects. He serves as a Co-PI for a 5-year mental health research study funded by the National Center for Minority Health and Health Disparities of the National Institutes of Health. Mr. Kwong has directed the Chinese-American Diabetes Health Literacy Initiative since July 2002, and organized a one-day health literacy training for approximately 100 clinical providers and allied health professionals in October 2003, funded by the Pfizer’s Visiting Lecturer Grant. Mr. Kwong's areas of academic interests include community health education, outreach, and advocacy, cross-cultural mental health issues, health literacy, and cancer education and screening. Since 1995, Mr. Kwong has conducted numerous workshops and presentations in local and national conferences on the topics of immigrant health, cultural sensitivity, mental health issues of Chinese-American families, community education and outreach, and health literacy. Mr. Kwong served as a panel speaker and presented on diabetes and health literacy at the 6th National Pfizer Health Literacy Initiative Conference in September 2003 and the Asian Americans and Health Conference sponsored by the Asian American Network for Cancer Awareness, Research, and Training in April 2004.

Kenny Kwong, CSW
Health Education Special Projects Manager
Charles B. Wang Community Health Center
268 Canal Street, New York, NY 10013
(212) 379-6988 ext 606 (Phone); (212) 379-6936 (Fax)
kkwong@cbwchc.org
www.cbwchc.org

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    Fourth National Conference is presented by
State University of New York Downstate Medical Center, Resources for Cross Cultural Health Care, Arthur Ashe Institute for Urban Health, US Department of Health and Human Services, Joint Commission on Accreditation of Healthcare Organizations
    As with the rest of Diversity Rx, this section is a work in progress and we welcome information on other efforts, programs, and reports that will expand upon the information offered here. Please let us know if you have other examples to include here.
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